Tuesday, 21 August, 2018

Private Access

Some datasets are available only on request and after signature of a material transfer agreement.
To make a request, please fill in the request form. (contact)

Description of the restricted dataset

The dataset is a partial extraction of the data stored in Orphanet, which is also accessible at www.orpha.net for consultation purposes only.
It includes:

  • Textual information
  • Patient organisations
  • Expert clinics
  • Clinical laboratories
  • Research activities
  • Orphan Drugs
  • Epidemiological data

Only non-nominative data are accessible in accordance with personal data protection laws.
The date of the last release is indicated.

To access the restricted area, you must have your login/password


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