Some datasets are available only on request
and after signature of a material transfer agreement.
To make a request, please fill in the request form. (contact)
The dataset is a partial extraction of the data stored in Orphanet, which is also accessible at www.orpha.net for consultation purposes only.
- Textual information
- Patient organisations
- Expert clinics
- Clinical laboratories
- Research activities
- Orphan Drugs
- Epidemiological data
Only non-nominative data are accessible in accordance with personal data protection laws.
The date of the last release is indicated.
ACCESS TO RESTRICTED AREA