We have chosen to apply the Creative Commons Attribution-NoDerivs Licence to all copyrightable parts of our databases. This means that you are free to copy, distribute, display and make commercial use of these databases in all legislations, provided you give us credit. However, if you intend to distribute a modified version of one of our databases, you must ask us for permission first.
The appropriate form when quoting Orphanet is:
Orphanet: an online rare disease and orphan drug data base. © INSERM 1997.
Available on http://www.orpha.net. Accessed (date accessed).
The appropriate form when quoting Orphadata is:
Orphadata: Free access data from Orphanet. © INSERM 1997.
Available on http://www.orphadata.org. Data version (XML data version).
On demand, it's possible to use one of our logo. Please use the contact form to ask
We make no warranties regarding the correctness of the data, and disclaim liability for damages resulting from its use.
Any medical or genetic information is provided for research, educational and informational purposes only. It is not in any way intended to be used as a substitute for professional medical advice, diagnosis, treatment or care.
Data submitted through this website will never be shared with any third parties. We reserve the right to use information about visitors (IP addresses), date/time of visit, page visited, referring website, etc. for site usage statistics and to improve our services.